The findings are illustrated by over 80 quotes from the respondents, including:
"They stopped the voices, and bought me back to reality"
"My life is hell without them"
"They are not 'antipsychotic' they just helped me sleep"
"The info from the doctors is very slanted and does not fully warn you of long-term effects”"
"If I had known about the risks, I would never have taken them"
"2A disaster. Anti-psychotics took away the best years of my life"
"They dumb me down & numb me up, I have no happiness or joy"
"They made me feel less than human, dead inside"
"It did not make the voices go away it increased the amount of voices and how often I heard them"
"Antipsychotics made me suicidal, and I tried to kill myself. I've never been suicidal when not on antipsychotics"
"My body is still scarred with stretch marks from the uncontrollable weight gain"
"Withdrawal from the anti-psychotic was torturous and took a very long time. I would never choose to take them again, ever"
The paper concludes, "Clinicians should pay more attention to the need for respectful and collaborative patient-prescriber relationships. This must include providing the full range of information about antipsychotics, including potential benefits and harms, the difficulty in withdrawing, and information on alternatives treatments such as psychological therapies."